5 months and a Christmas Concert

So as of today we’ve been here five months.

I got all excited yesterday thinking it had been half a year, but I just can’t count πŸ˜‚πŸ€£

Yesterday #1 Son earned this:

Which is the first one this month. I suspect it’s because yesterday he had an amazing day compared to three very hard ones.

I am certain that the bar is lower for him than some of his classmates and that’s okay I’m happy that the school are being so amazing for him. It’s giving him the boost he so desperately needs.

We walked home and it was blasted cold. TT refused to wear gloves so I tried this:

She continued taking them off. Repeatedly. Whilst screaming for a “duddle”. So I put them back on and we kept walking for about half a mile. It was biting. Several people told me that “she really should be wearing gloves”

Really? Should she? HAVE YOU EVER MET A TODDLER?! After a while she began screaming in earnest. And within the shouting I could make out “owwwwww” so I stopped, put my (warm, they had been on my hands) gloves over hers.

Got a “ta mommy”. I won’t say she’s learned, but she kept them on until we got home.

We had Snickerdoodle hot cocoa when we got home though.

Cheered everyone up, because I was not stopping for ice cream!!!!

Today was the Third Annual Christmas Concert.

Some readers may remember that at his previous school’s Nativity #1 Son was meant to be a wise man but refused to actually participate until the 11th hour.

He did the same with the concert.

Given that it is a school-wide performance they split it by alphabet A-L then M-Z which made the difference between 08:30 and 10:30 performances.

However yesterday I received an email from the Guidance Counsellor telling me that they felt that since he had been struggling so much, they would prefer if we could attend the earlier performance and he could then not undertake the later one.

We were happy to oblige (the hus-creature had his big office move today, so the earlier he could get into the office the better) so we went up early.

He performed and reasonably well (though not happily). There are no photos because other people’s children.

At the end, they brought him round the front of the stage slowly, and I deduced (correctly) that they wanted him to see me and know we had been there. So I made my way to the front, gave him a huge cuddle and told him how proud I was of him, and that he didn’t have to do it again.

I watched his whole body relax bless him.

Which made it even more amazing that when the lovely J brought him home that she had a message for me from his teacher that he had performed the second time.

My heart could have burst with pride honestly.

It was a very good day.

Medical update

So, yesterday I toddled up to see my Primary Care Physician. Basically my new GP.

He is a lovely man.

He wanted to follow up on my blood pressure.

Which, after a week of medication clocked in at an acceptable 120/82

So yes, the losing weight thing will have to happen, but my headaches are now a thing of the past and I feel so much better overall.

And this was what greeted me on the way:

So that wasn’t as pretty as I’d hoped but then this:

Real icicles. Everywhere. They are just beautiful.

I’m really loving winter here so far.

I have no doubt that by the time spring comes around again I’ll be desperate for it, but I’m enjoying this at the moment.

And, in the most exciting news

My hysterectomy has been provisionally booked!!!!!

Yes ladies and gents, Monday 5th Feb is D-Day and I. Cannot. Wait.

Tomorrow I should have it confirmed. Please let it not be cancelled.

Our (Festive) weekend

This weekend just gone, a snowstorm was predicted.

As an aside, I have been more than a tad grumpy that there hadn’t been any snow. I mean gloom and doom from predicted from November and it’s now mid-December

Anyway, my prayers were answered on Saturday and it snowed.

But not a blizzard. Just a steady, visually light, constant shower of snow that, by the end of the afternoon, left 5-6 inches on the ground.

It stopped too late to let the kids play in it though. #1 Son was most sad about this.

However, on Sunday, whilst TT was napping, the hus-creature took him out to play in it.

Behold the first ever snow angels.

He had so much fun. Then there was Snickerdoodle hot chocolate.

After TT arose we also decorated our tree. Our real non-fake Christmas tree.


I swear, I was more excited by this than the children πŸ˜‚πŸ˜†πŸ€£


Baubles were divided by coloured thread topper:

  • Purple – #1 Son
  • Orange – The Tiny Tyrant

We subsequently found the box of “special” ornaments. You know the ones, every family has them. Either bought for, or made by, the children.

Yes, those are Adventure Time baubles.

TT also spent much of the day being a modern Disney Princess

Ana with a light saber.

It was a good weekend.

The (apparent) aftermath

I am unwell today.

I’ve had killer headaches off and on for over a month – a lot of that can most likely be attributed to my untreated hypertension (started my new medication yesterday – I am now on three pills a day πŸ‘πŸ»πŸ˜‚)

But at 3am this morning I was dragged awake with a screaming head – to the extent I actually woke the poor hus-creature by sobbing.

And I remained awake for at least an hour.

This beautiful creature kept me company though:

I’ve often said we have a dog-cat πŸ˜‚πŸ€£

Sadly kitty-snuggles were not sufficient and at 4am I was calling God on the porcelain telephone.


Note: American toilets are not comfy for doing this if you are used to British plumbing.


Oddly I felt better enough to then snuggle down with my furry companion and my cuddly hot water bottle (that would be the hus-creature) and basically pass out until the alarms went off.

I’ve pretty much been a zombie for the rest of the day though. Just mainlining stodge, carbs, sugar and caffeine to get through.

No it’s not healthy but lord has it helped.

My head is still pounding, and #1 Son has a half day today, but he’s being lovely and TT is also being reasonable.

A little Christmas present from me to me arrived today:

Which has helped.

I am so tired of feeling sick and tired. Endometriosis is a bastard, and all the other conditions can get in the sea as well.

An incredibly successful day

For both #1 Son and myself.

At 09:00 this morning I strode off to school suited and booted for #1 Son’s initial evaluation meeting for Special Education Provision.

I’ve been both dreading and looking forward to this by turns.

He had to meet certain specific criteria to qualify for an IEP – which is an Individualised Education Programme.

Basically it was to see whether or not he could be statemented.

I spent a year working in the SEN department of Oxfordshire County Council, so I knew how hard getting one of these could be, at least without a metric tone of supporting documentation and medical backup.

And the autism assessment process is stalled a bit. It’s just so slow.

So I had reports from:

  • An Educational Psychologist.
  • An Occupational Therapist.
  • A Speech and Language Therapist
  • The School’s own SENCO

Which came home on Friday, which I read, re-read, highlighted and annotated.

I went up to this meeting agreeing with the reports, but prepared for battle if needed. I knew they wanted to help him, but criteria are criteria and he had to meet them to get the extra help.

At the meeting were:

  • Myself – daddy stayed at home with TT
  • The Principal
  • His class teacher
  • The school nurse
  • Head of SEN services for the district as meeting co-ordinator
  • The school Counsellor – who #1 Son has dubbed “The Feelings Lady”
  • The SENCO
  • The Occupational Therapist
  • The Speech and Language Therapist
  • The Educational Psychologist

It was a full meeting. I was completely drained both physically and emotionally after it. He’s not the only one in this household who can get overwhelmed.

So he couldn’t be registered with a disability due to autism, as the school cannot diagnose that.

He couldn’t get the IEP on cognitive ability because the reports proved he is average to above average in almost all areas.

So what’s left? Well, a few things but the main one is Developmental Delay.

That is a blanket term that covers a lot of things, but the one that covers him best is social, emotional or adaptive functioning.

I don’t disagree. He has severe sensory issues, cannot relate to his peers (but is great with much older and much younger children), confidence issues and is struggling generally.

I just feel a massive sense of relief.

Within 10 school days we will get a copy of the IEP and once we read it, sign it and return it, it becomes “activated” and off we go.

There will be more meetings, more reviews. This is not a one-off thing, but the main hurdle has been jumped and he will get more help.

And now for the second good thing of the day.

I went for a pre-operative assessment with the surgeon who would perform my hysterectomy if agreed to.

Well, take a shufty at this ladies and gentlemen:

For those in the audience who cannot read doctor handwriting (it’s a skill), he had agreed, without any hesitation, to perform:

A TOTAL ABDOMINAL HYSTERECTOMY

WITH BILATERAL SALPINGO OOPHERECTOMY

They are taking Every. Single. Thing. Out!!!!

I could have kissed Mr. Surgeon Man.

πŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠ

I’ve been warned that because they will go in through the belly it’s going to be the full six weeks recovery time for the procedure alone, coupled with six months to feel myself and back to normal again.

That’s fine.

Not to be outdone

By her brother, TT was completely hysterical and inconsolable from 1-2am

I brought her into our bed to calm down but we got poked, slapped, pinched, “hello hello mommy/daddy” and “shhhhhhhhhh”‘d at until we gave up and put her back in the cot at 2.

She settled seemingly easily (I should have been more suspicious) and we got up at the normal time and I went in to get her up.

Only to be greeted by a scene from The Exorcist 🀒

So it’s been a double bath day for both kids. But honestly you would not know she’s been sick.

This was filmed at 09:09:

Hop the bunny

I didn’t know she knew that bunnies hopped!

Whilst I am following the normal sickness bug protocols just in case, I am mostly putting it down to irritated gut from all the screaming.

She has not been happy with following the BRAT diet all day.

I also introduced her to Simon’s Cat in an attempt to save my sanity today.

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There has since been a constant litany of “more cat”, “more kitty” or “more bunny”.

It’s been a long day.

I also had an appointment with my primary care doctor at 11:15. Ostensibly for a medication review.

I’m not certain he has prescribed me anything for my professed (and finally admitted) anxiety but he has definitely given me a prescription for blood pressure medication.

Yes, I have hypertension.

Deep joy.

I have been suffering from blinding headaches off and on for over a month and finally I admitted that the hus-creature was correct to nag me about it as it could not just be put down to “late Zoladex jab”

My lovely doctor man concurred with this, and I need to return at 09:45 on Monday December 11th to see if it’s improving.

I was still waiting for over an hour to see him though….

This is not the shining example that is being touted across the pond…

I mean it’s good, at least if you have insurance, don’t get me wrong, but it’s flaws are incredibly similar to those I have experienced within the NHS.

 

Also, the pharmacy did not have the required medicaments.Β  They offered to send it to another pharmacy, but I needed to get home so that the hus-creature could get into work for the afternoon.Β  Also, it was sent as an electronic prescription so I’m not certain I trust it to be sent along, and I’m not entirely sure where any other pharmacies are locally.

 

All good fun.

Deep sleepers

Come with their own share of issues.

Tonight our living room contains a small invader.

#1 Son beat us to the punch tonight, and as such is “camping”.

It was discovered by daddy getting a very wet t-shirt as he carried him to the bathroom.

And contrary to what said hus-creature thinks, I did not laugh at his misfortune.

I was too busy quietly cursing. This is an issue given he has a high sleeper.

We will change his bed in the morning. If we did it tonight it runs the very real risk of waking TT, as it involves bringing the ladder (a clanking metal one) from the basement through her room and into his.

So choices were:

  1. Spend 15 minutes making up the sofa bed and letting him camp down there. But risk him not going back to sleep.
  2. Make up his bed. Which takes upwards of 30 minutes, runs the real risk of waking TT, and also risks him not going back to sleep by keeping him up longer still.

We went with 1.

He seems pleased and is already asleep again.

The cat is also thrilled to have her former hidey hole back. Hope she leaves him alone.

The Thanksgiving Break

It’s taken me a little while to write this as I am missing everyone like crazy so it’s been tough to get things written down.

It was wonderful.

We stayed for three days in the company of family (on the hus-creature’s side) in their stunning guest apartment.

I got to know a number of my lovely in-laws a lot better, which was really something special.

We had the turkey. And the hus-creature and I most generously offered to save everyone from the dreaded dark meat.

Honestly we truly prefer it.

Let me see if I can list the culinary delights:

  • Turkey – of course
  • Mac and cheese (delicious)
  • JalapeΓ±o cheddar corn bread (I need the recipe for this wonder)
  • Sweet potato bourbon maple mash (oh so good)
  • Green beans
  • Gravy
  • Cranberry sauce

Then there was pie. Oh so much pie.

  • Chocolate peanut butter
  • Apple
  • Pumpkin
  • There were two more but I forgot.

Apart from the apple briefly going missing, it was all delicious.

The kids were remarkably well behaved.

TT ate actual food:

#1 Son… did not. But I didn’t really expect that he would.

They had loads of fun outside in the gorgeous grounds of the main house.

TT made daddy take her for a ride in the cart:

There was much happy shouting of “wheee” and “MORE” πŸ’•πŸ’—πŸ’•πŸ’—

#1 Son just ran about a LOT.

There was a brief moment of panic. Do you see the large body of water? There was a moment when Daddy could not find him. He had wandered in to tell me about his “club house” and wandered off again. He meant the guest apartment, which is where he had gone.

Without telling us that he was going there!!!

So no, he had not drowned himself, but we all panicked. He was most confused as to why.

On Friday, almost everyone else took the train to visit New York and do the tour of Lady Liberty.

We opted not to attempt to drag the offspring up 200+ steps. Granddad also decided not to go. So there was brief discussion on how to entertain said childer-beasts, and we decided to go to the nearby aquarium, and leave granddad to rest.

However he decided that he would like to join, which was lovely. However there wasn’t room for five people in our car, lovely though it is.

Therefore, rather than take a Lyft on a very busy day, I selflessly (honestly, see the halo πŸ˜‡πŸ˜‡πŸ˜‡) opted to stay behind in the guesthouse with my knitting, tea and leftover turkey.

Totally generous of me wasn’t it? πŸ˜‚πŸ€£

They had a lot of fun:

Right until they found a soft play area. Whereupon #1 Son had a full on meltdown, including trying to escape from granddad, because other children wanted to play with the things he was building an invention out of.

How very dare they πŸ™„πŸ˜πŸ™„πŸ˜

And so the trip was cut short and they all came home.

All in all it was a lovely visit with family with many moments of happy.

The drive home was much less eventful than the trek up, we managed it on a full ‘tank’.

However upon our return we discovered that when, in his haste, the hus-creature had dropped the car charger to the ground before we embarked, it had gone kaput.

Which, in my humble opinion, makes it entirely unfit for purpose. Sadly it is still busted over a week later but the company are working on it. Stand by for that update.

So yes, that was our Thanksgiving Break. Many thanks are extended to Domi et al for putting us up and for inviting us up for Christmas.

We are very much looking forward to it πŸ‘πŸ»πŸ˜˜

December Madness

Begins.

I’m still working on the Thanksgiving update so stay tuned for that dear audience.

So. Yesterday was December 1st. Therefore Advent Calendars are back in this household.

However this year no edible ones.

Mainly because we think TT is still a bit young for daily chocolate, and she’s old enough to be totally annoyed if her big brother has one when she doesn’t. So we went with fancy toy ones.

But, there are very few options for two year olds.

#1 Son has a Lego one. TT? Well we scoured everywhere and finally found a Paw Patrol one with no tiny pieces. TT still insists on sticking non food items in her mouth!

As for me, normally I have a Hotel Chocolat sharing one, but I didn’t think about it in time and I don’t know if they ship here.

So instead, I treated myself to a Sparkle Yarn advent box from Tinky Dye Yarns. The lovely Maria has been still shipping my clubs to me so this was a lovely addition.

The glorious box:

Dec 01:

It also comes with a bespoke pattern which will soon be on sale on Ravelry from the lovely Julie-Ann Amos and I am happily working my way through it.

I have not yet opened today’s window.

We also went to the Melrose Christmas Lights switch on last night:

There was live music

The children wanted some of the light up plastic tat that they sell. #1 Son got a light sabre, TT a snowflake magic wand.

That wand lasted less than 30 minutes before she whacked it against the stroller hard enough to shatter the snowflake πŸ™„

It’s not like they were $10 apiece or anything….

But the piΓ©ce de resistance of the evening was seeing SANTA.

Yes those are the Melrose High School cheerleaders.

The best bit though?

The kids. Both were so thrilled to see Santa.

I teared up with the happiness. I didn’t expect the sheer delight for both of them.

Mall visits will happen soon.

Today or tomorrow we will buy a tree and new decorations.

Oh, I’m also trying a new nail salon tomorrow as my last set didn’t last two days 😑😑😑

Parent-Teacher Conference

We had our first one for #1 Son last night.

I would be lying if I hadn’t been approaching it with at least a modicum of trepidation.

But honestly? It was amazing.

They have kept such good notes on his progress, both educationally and behaviourally.

He is improving. Slowly, gradually, but it’s visible and it’s there.

Perhaps the most important takeaway?

HE CAN READ!!!!

 

Honestly? I didn’t think he could. I knew he knew his letters, but stringing them into words (at least at home) is something he apparently couldn’t do. I now know it’s wouldn’t.

Busted kiddo πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£

He is getting a lot of 1:1 support with the paras during centres, and when that happens he does well. But at the moment he doesn’t have one of his own and he’s one in a class of twenty. So they are trying, gradually, to scale back and seeing what he can cope with.

Basically it’s data gathering to bolster their bid for extra support for him. That will either start or happen next Tuesday at the Special Education meeting.

I am behind them 100% and fully intend to say so. Apparently having parental agreement and support really helps.

I would walk through fire to get him the help he needs, so let’s hope that the relevant professionals are on the sensible side and that I don’t have to go full on mama bear rage mode on them.

Or worse. Be British at them πŸ˜‚πŸ€£

His teacher also said that cognitively he is exactly where he needs to be. That he’s smart and funny. That he’s kind hearted. He’s also a perfectionist and sensitive.

She’s a true angel she really is.